I want to start with not all of any group I mention are like this.
It just happens that the ones from these groups I find insert themselves in my life without me asking are loud.
So my list of irks;
1: when other diabetics on twitter, diabetes.co.uk, facebook ect tell someone they should test X and Y time each day when they know (as said forums talk about it often) that not all diabetics have the resources to do so. It is hard to persuade the NHS to give a type two a meter and if they do it is with limited strips. So then a newbie comes and you tell them they have to test 2 hours before and 2 hours after? A rule not even all DSN try enforce on type ones?!
2: Where literally any question you ask is answered with ‘yeah but have you tried a low carb high fat diet’. No. No I have not. And Other issues;
- my diabetes is brittle and reacts badly to decreases in carbs as noted by several endocrinologists, other professionals and myself ie not you
- my nurse is asking me to eat MORE carbs as you, knowing nothing about me in full, harp at me to eat less.
- fats impact health in many ways, including the other health reasons you know nothing about
- no one has to follow one set of rules for type one or type two or any other form of diabetes. it has never been that way. ever.
- telling someone who is newly diagnosed and evidently on a set of instructions from a professional to throw it all away and follow a random user name’s dietary advice is suspect to say the LEAST.
- YOU are a specialist in YOUR diabetes which is DIFFERENT from EVERYONE ELSE.
- My diabetes does not follow the rules. Stop the ‘what if’. Stop assuming I am lying. Have some respect.
- Forums that allow LCHF advocates to comment continuously at users but when I interjected to suggest maybe there were other ways I was threatened with a ban.
3: How many comments you have made to any sort of forum does not make you an expert. Nor does the number of seminars you have been to or the number of badges you have collected. I will always be the expert on me, with my Doctor a close second. As is the case with any diabetic.
4: More respect, less…bullying to be honest.
5: Stop flat out telling people spikes after meals are bad. I, and many other diabetics have them and once our insulin is through our system we are in the ever changing arbitrary ‘targets’ . Many of us have taken every insulin, monitor every moment, log every second we take in oxygen and our bodies still spike. Adrenaline a lot of the time. In other people it is other things but you are NOT a bad diabetic who is not trying hard enough if your bg hits 14 after eating pasta.
6: Stop telling people to take insulin for things most do not? Everyone needs to work out for themselves what their body needs insulin for. A wee bit higher is safer than dropping horrendously low because you do NOT need insulin for that protein that forum said you did. Wow avatar wow. Personally, if I eat baked beans by the bucket my bg stays the same. Eggs? Nothing. For others they may need to take something. Some find the fat in foods impact when the carbs hit. Some find it instant. Some find it later. Some find it depends on the fat content. But don’t go tell someone that something, usually a protein source, will need units of insulin. If they ask why their sugars are elevated after eating something sure point out ‘hey maybe you are one of the folks that needs a unit for them scrambled eggs’ but don’t, try be their nurse. Every diabetic is different. If my mum eats a slice of melon she needs half a unit. I could eat the whole damn thing and my libre would stay stable for hours. We are not machines.
7: No again. WE are NOT machines.