I’m a 30something year old history graduate turned retail boss that has a love-hate relationship with my endocrine system. If we were a facebook status, we’d be ‘it’s complicated’. I’m sure that a lot of it does work but unfortunately I’m aware of a lot of it just not. I’m a type one diabetic and have been for over 20 years. My ‘control’ has gone up and down over the years. Sometimes it was my fault and other times my diabetes has just defied the ‘rules’ and stumped my diabetic team and myself even worse.

It likes to keep people on their toes, okay? I suffer from chronic dawn phenomenon. My body thinks we’re running a marathon at 5am every morning and starts releasing glucose like whoa. That or it thinks we have to go fight bears. I am not sure but I’d rather just sleep. The doctors and I have tried every insulin, every test, every trick and every theory going and I have the sleep deprivation to prove it. Well, or that was the case. Now I’m updating my bio I know there is so much more we could do bug sigh. Money.

I now have an insulin pump which has tamed the beast as much as possible. I wake up with good blood sugars these days most of the tiem but still feeling sick after the internal war. Nothing is going to cure that any time soon so best to focus on making the best of it.

My thyroid also decided to pack in a couple of years ago and does a half ass job of things, meaning I’m constantly tired and cold. Or sweating buckets as my team at work as me to put the heating up. Whoa.  It took them a while to catch on to this as my diabetes masked a lot of ‘symptoms’ I put down to my ups and downs. Between these two charming endocrine issues I’ve fallen to chronic fatigue too. At my worst I slept most of the day and spent the rest of it hoping I could go back to sleep soon. I could barely walk the length of myself but I’ve dragged myself back to managing a part time job and even walking my dog who seems to protest walking more than my endocrine system does.

It isn’t just the hormones in my body that like to play around though; my brain also likes to get in on the act. I have social and general anxiety disorders which like to reek havoc with my diabetic control and the dreaded depression. All of my endocrine gremlins play off each other, mask each other’s symptoms, and make it hard for my medical team to decide what to try and tackle first. I live in constant cycles of questions. Am I anxious because my blood is high or is my blood high because I am anxious and I really could use a sit down and a fresh cuppa, you know?

The endometriosis and tendinitis poke their heads in at times with the migraine issues just to keep things interesting too. At this point, my endometriosis may be the worst of the them all. The pain is chronic and constant and due to covid-19 there is just no chance of me being seen any time soon.

I decided to start this blog because I need somewhere to vent a little, maybe gain some support, but more so because I don’t think many people realise how complex a person’s endocrine system is and how one condition can so detrimentally influence another. If I can raise some awareness about these issues then that would be fabulous!


3 thoughts on “About

  1. J says:

    Hi, interesting Blog!

    Are you aware that having inadequately managed diabetes and hypothyroidism excludes the diagnosis of CFS?

    The diagnostic criteria for CFS state that it can only be diagnosed if known, organic causes of fatigue have been excluded, so by definition your endocrine problems mean you shouldn’t be labelled as CFS.

    It doesn’t matter really, and if you’re happy with it then that’s fine, except that the CFS label often acts as a brick wall, leaving treatable problems to go uninvestigated because doctors assume the symptoms are ‘just the CFS’ and that there’s nothing they can do.

    For example, if you have Type 1 and hypothyroidism then you’re also at higher risk of developing autoimmune Addison’s, which presents very much like CFS and is often missed – but is treatable.

    Anyway, I realise this is really none of my business so will stop. Keep blogging!

  2. alleviatinganxiety says:

    I find all of your post to be interesting and it has helped me to understand how difficult having diabetes really is. I also think it is inspiring that you use your blog as a place to share your struggles and allow people to become more aware of diabetes. Which is why I would like to nominate you for a Liebster Award. This is a recognition that is posted to your blog when someone who reads your blog nominates you. If you want to find out more about this award, you can visit my page and answer some questions, I’d love to hear your answers! http://alleviatinganxiety.wordpress.com/2013/05/20/liebster-award/

  3. Jennifer Butler Basile says:

    “I don’t think many people realise how complex a person’s endocrine system is”. That’s very true, Grem. Good on you for bringing it to light!

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